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$24.95
Mar 05, 2024 | ISBN 9780262548151
Buy the Paperback:
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Praise
“Carefully constructed, beautifully written, and well documented and researched, The Long Haul compiles narrated accounts of people living with COVID’s long tail, unraveling the history, the science, and the politics involved in this chronic condition. Prior shines a spotlight on the aftermath of Long COVID and gives voice to the millions affected worldwide, challenging researchers to increase their awareness of research done on other post-viral illnesses. The volume makes a call to action for health care providers and patient-rights and advocacy groups to bond together, find support in each other, and take more active roles in their own patient-centered care, affecting study design and health care policy reform.”
—Choice
“Prior’s striking narrative tells the political story of long COVID, beginning with patient organizing from the early days of the COVID-19 pandemic and weaving this narrative together with his personal story of living with a chronic post-viral condition.”
—The Lancet
Table Of Contents
Contents
Preface to the Paperback Edition 9
1 A Future in Jeopardy 13
2 A Surprising Problem 27
3 A Groundswell of Patient Activism 43
4 Patients Become the Experts 72
5 A Lifelong Mission 90
6 We Predicted This 117
7 Covid for Christmas 131
8 Unraveling the Mystery 147
9 The NIH Goes Big 162
10 Gaslighting, Disbelief, and the Search for Answers 177
11 Chronicles of Uncertain Recoveries 195
12 Precursors: ME/CFS and Lyme 203
13 Theory of Everything 220
14 A New Epidemic of Disability 246
15 The ePatient Revolution and Crowdsourcing Research 263
16 Expectant Hope 277
Acknowledgments 289
Notes 293
21 Books You’ve Been Meaning to Read
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